Photos show: Nicci Adkins with her daughters Daisy (4) and Pixie (six months) Walsh

A Southport mum has praised a community children’s nursing team who helped her daughter battle rare condition. 

Nicci Adkins’ four-year old daughter Daisy has Diamond Black Fan Anaemia, a rare condition that means her body doesn’t produce any red blood cells. Along with monthly blood transfusions at hospital, Daisy requires weekly visits from the Children’s Community Nursing Outreach Team (CCNOT), based at Ormskirk hospital, to help manage her condition.

“We couldn’t be without the CCNOT team,” says Nicci. “Getting to monthly hospital appointments is challenging enough with two children, having the CCNOT team come to us for weekly visits really takes some of the stress away for both Daisy and me. Daisy is familiar with the team and they really put her at ease. They even visit her at nursery!”

CCNOT was formed in 2013 and are a team of experienced paediatric nurses who provide ongoing medical treatment and assessment for sick children at home, seven days a week. They provide treatment and support for children with a range of conditions including mild asthma, tonsillitis and gastroenteritis, along with rarer conditions and ones that require long-term support.

By providing treatment at home, such as daily intravenous antibiotics, this reduces the need for hospital admissions and reduces anxiety for children.

Patient satisfaction surveys frequently show how much parents value the service with statements such as “an asset to the NHS” and “invaluable” commonplace.

Nicci certainly agrees: “If we didn’t have the CCNOT team, it would mean a visit to hospital at least once a week. The flexibility of the team really meet Daisy’s and our family’s needs. They really do help make life easier during a stressful time.”

Dr May Ng, Clinical Director of Paediatrics at the Trust, said:

“Our Children’s Community Nursing Outreach Team provides high quality care and embodies the exemplar standards for child health, as set out last month by the Royal College of Paediatrics and Child Health. We are extremely proud of the service and this is echoed by our patients and their families.”



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