A Southport woman Kathy Edwards is helping raise funds for children and families suffering from Bifida Hydrocephalus.
At the 20 week scan, Daisy was diagnosed with Spina Bifida Hydrocephalus along with clubbed foot and the severity could not be determined. She did not move her legs at all during the first and re-scan.
We were told to expect her to be wheelchair bound with no lower body movement, catheter dependent, and to have some degree of brain damage (again not determined degree).Daisys hips may have also been dislocated. She would have needed a shunt inserted into her brain perminently to drain fluid, spinal surgery and foot correction within 12 hours of birth.
Shunts are not always 100% effective and can cause side effects such as seizures etc.
We were put in contact with a neuro surgeon (who would be performing the surgery) and were more or less told to expect the worst.
Eventually we made the heartbreaking decision to no longer go through with the pregnancy and delivered our baby girl October 31st 2015 at 22 weeks, weighing 360g
We would love to be able to help those with the same condition as Daisy, and any parents who are or will be unfortunately in the same position we were.
Thank you for reading, and thank you for your donation!
Sleep tight Daisy, love always xx
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